In many ways this has been a God-send for Carl and I. Like most people the word Hospice is scary and says it’s over; prepare for the end. This is not the focus of palliative care. Whether it’s short term quality of life or long term, the medical team helps both the patient and the family.
The treatment regimen prescribed by his cardiologist is continued. He has a music therapist who gets him to exercise along with discussions about music; a nurse that checks him once a week and reports to the doctor; an aide to help him with showers; a social worker who assesses emotional and mental well-being and any needs I might have; a chaplain and a doctor. Since Carl was a pastor he and the chaplain have some enjoyable discourses. Equipment that I would normally have to buy or pay a co-payment, durable and disposable is 100% paid for through Medicare. It is my hope that his next heart assessment will show it’s increase in strength. If we are successful, he won’t need this kind of care. If not, I am glad to have it.
Attached is a link that explains palliative care. It’s a quick but informative read.
https://getpalliativecare.org/